Tuesday, September 10, 2019

e-newsletter September 2019

e-newsletter September 2019


Always laugh when you can. It is cheap medicine. - Lord Byron
From there to here, from here to there, funny things are everywhere. - Dr Seuss

September is a big month for MS with our Awareness Week and our Street Appeal happening, as well as many other activities including the 3rd Annual Comedy Show – Laughter is the best medicine. As I was writing this there were still tickets left however, we are now completely SOLD OUT! I’m so sorry to everyone that was still intending to purchase their ticket. We will have a waiting list in case of cancellations. To put your name on the waiting list please e-mail info@msakl.org.nz.

The Movie fundraiser – The Farewell – is also SOLD OUT! Huge thanks to everyone for supporting these great fundraising initiatives, as well as Sam Smith for organising the Comedy Night and Fran Watts for organising the Movie event.

For the first time ever MS Auckland has launched a Text to Give campaign making it easy for people to donate $3 to MS Auckland, just by texting HOPE to 3181. Please give it a go and help us spread the word. You might want to share our facebook post, or send the notice to your friends, family and colleagues. We have lots of little hand out flyers that will be put around shops and used at our Street Appeal sites. If you would like to distribute some in your neighbourhood or around your office please let us know and we would be happy to send some your way. Just e-mail events@msakl.org.nz or call the office on 09 845 5921.

After almost over a year the MS Auckland Board members are finalising their work on a future plan for MS Auckland. The final step is getting more feedback from the community on support services. A survey has been developed to get as many people in our community who either have MS or care for someone with MS responding. The survey will take about 15 minutes to complete. You can complete the survey online here. Or you can come to one of the workshops being held this month where there will be more opportunity for discussion. A list of workshops and venues can be found within this newsletter. Every person who fills in the survey, either online or at the workshop, will go into the draw to win a $100 grocery voucher.

I have so much news to share with you this month! Please take a few minutes to relax, sit back and take in all the news.

In this newsletter:

1. Text To Give Campaign
2. MS Street Appeal – Your help is needed
3. Future Services – Feedback needed!
4. Oceans of Hope – University of Tasmania
5. Volunteers needed for a free one hour treatment!
6. Free online MS course
7. Who Should Win the Rugby World Cup Japan 2019?
8. Sign the petition to increase Pharmac Funding
9. Welcome to Lucy and Catherine

1. Text 2 Give Campaign – open now!
For September only everyone can easily donate $3 to MS Auckland by texting Hope to 3181.

For people who like to donate something at our Street Appeal but don’t carry cash, this is the answer! Texting is easy and MS Auckland receives the full $3 from each text. Try it today, or everyday.

Please also consider sharing our facebook post with your friends and help us to spread the word and encourage everyone to give $3 this month.

Of course for those who would like to give more and would like a tax receipt you can always donate through our Give-a-little page.

2. MS Street Appeal - 20 – 22 September
Collectors are still needed for Kumeu, Orewa and Manukau. If you can help out in any of these locations we would love to hear from you! Please contact Liz on 09 845 5921 or at streetappeal@msakl.org.nz.

Liz would also love to hear from you if you would like to have some buckets for your workplace, or host an event for MS!

3. Future Services Consultation Survey – open now until 30 September
If you have MS or you care for someone with MS then we would love to hear from you as we plan our services for the future.

This is your opportunity to have input and help shape future services at MS Auckland.

You can either fill the survey on-line, which will take about 15 minutes to complete, or attend one of the workshops listed below in your area that will be offered throughout the month. At the workshops there will be more discussion and you can fill in a hard copy of the survey. Everyone who fills in the survey, either on-line or at the workshop, can go into a draw to win a $100 grocery voucher.

To attend one of the below workshops please e-mail your name and the workshop you would like to attend to info@msakl.org.nz or call the office on 09 845 5921.

MS Auckland Future Services – Community Workshop Consultation Sessions

Date Time Location Venue
Monday 9 September 10.30am to 12 noon Manukau Manukau Library Meeting Room, 3 Osterley Way, Manukau
Friday 13 September 12 noon to 1.30pm Howick Uxbridge Art and Culture Centre Meeting Room, 35 Uxbridge Road, Howick
Monday 23 September 10.30am to 12 noon Whangaparaoa Whangaparaoa Library, Pohutukawa Room, 9 Main Street, Whangaparaoa
Monday 23 September 7pm - 8.30pm Remuera Remuera Club Sports Bar, 27-33 Ohinerau St, Remuera
Tuesday 24 September 10.30am to 12 noon Takapuna MS Auckland office, Top Floor, 5 The Strand, Takapuna
Friday 27 September 10.30am to 12 noon Henderson Neuro Connection, Tui Glen Centre, 2 Claude Brookes Drive, Henderson

4. Oceans of Hope – 2- 6 December Oceans of Hope is back in New Zealand at the end of the year. This is your chance to be part of the crew sailing around the Hauraki Gulf, departing from and returning to Auckland. There are still a few spaces left. For more information check out the Ocean of Hope Website or for costs and an application form contact Ingrid on oceansofhopechallengenz@gmail.com

5. Volunteers needed for a free expert one hour treatment!
Gilly Davy is looking for volunteers to assist with her MS Get a Head Start graduate health professional courses.

If you present with any of the following issues with your MS and are available on that date to join her at the AUT Millennium (Rosedale North Harbour) then please contact Gilly on gilly@ms-ghs.com or on phone 022 044 0295

6. Free online MS Course
The University of Tasmania offers a free 6 week online course on Understanding MS.
The next course starts on the 16 th of September

You can read more about the course and enrol here:https://ms.mooc.utas.edu.au/index.php

7. Who Should win the Rugby World Cup Japan 2019?
“Who Should win the Rugby World Cup Japan 2019?” is a fabulous little must-have pocketbook for every person with an interest in Rugby. Milton Jennings has written and printed the book with 100% of every book sale going to support the services at MS Auckland.

You can purchase the book through his Give-a-Little page. Be sure to include your address in the comments to receive the book by post.

If you would like to pick up the book from the office it will cost you only $10 instead of $15. We have a number of books available at the office. E-mail Becky@msakl.org.nz to have a book set aside for you to collect. This is a great little gift for family and friends and there is a limited amount available. Go to https://givealittle.co.nz/fundraiser/rugby-world-cup2019 and order your book today!

8. Sign the NZ Parliament petition to increase Pharmac funding
There is a petition out to increase funding for Pharmac. The NZ Parliament petition can be found here:


You can also find some information on this You Tube link: https://www.youtube.com/watch?v=RyJzEjzFXtw&t=67s

9. Welcome to Lucy and Catherine
Andrea, our MS Community Advisor for West Auckland and Rodney is just about to go on Maternity Leave with her baby due within the next month! We are so fortunate to have 2 lovely people who will be covering for her over the next year. Some of you may already know Catherine who helped us out last year in Central Auckland. Catherine will start with us again in mid – September and will cover the Rodney area for one day a week. Lucy, who is new to us, has just joined us and will be covering West Auckland and will be working 4 days a week. They are both very happy to be joining us and look forward to getting to know the people in the communities they will be working in.


A sad final farewell …..Tina French, Honorary Life Member of MS Auckland, sadly passed away this week.

Tina French, who will be remembered by many members as the bright, cheerful and efficient office manager at the former North Shore MS Society, has died at her home in Scotland. Both she and her husband Roy Burgoyne served terms on the North Shore committee.

Tina and Roy had been living at Orewa until they decided to emigrate to Scotland earlier this year. Tina was born in England, where her brother Chris lives. She had been confined to a wheelchair in recent years but she and Roy continued to take a deep interest in the Society and its members and attended many of our functions.

Our thoughts are with Roy and her family during this very sad time.

Join us on Facebook for more news, events, updates and interesting tidbits!

Wishing you all a lovely Springtime!

With warm wishes,

Ingrid Minett
General Manager