Monday, May 11, 2020

e-newsletter May 2020

e-newsletter May 2020

“Connection: The energy that exists between people when they feel seen, heard, and valued; when they can give and receive without judgment; and when they derive sustenance and strength from the relationship.” ―Dr.Brene Brown

Hello May! The last 6 weeks or so have on the one hand seemed like a year and on the other hand has gone by so fast. So much has changed! The feedback we have been receiving from our community is that you are generally settling into the new normal with COVID-19. Nothing changed in regard to MS Auckland services as we moved from Level 4 to Level 3, and we are now looking at how things could look for us at Level 2.

As we move into the different alert levels, we will keep you up-to-date on any changes to our services, in the meantime, the best place to find the latest information about the COVID-19 situation in New Zealand is on the Government’s dedicated COVID-19 website: https://covid19.govt.nz/

Our ‘zoom’ meetups have been thoroughly enjoyed by all who have participated. We have learnt from lockdown that staying connected is very doable with modern technology. We are looking at keeping the zoom meetups going and integrating it more with the work of the Community Advisors as we move forward. Less time on the road for the Community Advisors will mean more time available in connecting with people and services. Face to face meetings and visits are highly valued and we won’t want to let go of this completely. Just imagine a workshop where everyone who wants to can participate in the comfort of their own home. No need to book transport or fight Auckland traffic! And if the timing doesn’t suit, then a recording can easily be listened to afterwards. The only requirement, of course, is a computer and the internet.

Connection is so important! As I was reminded lately, connection is also a big predictor of happiness. The World MS Day is about Connection this year, and we are gathering ideas on how we can celebrate this very important theme on May 30th this year. Please send your suggestions through to me at ingrid@msakl.org.nz.

In this issue:

  1. Connecting with Zoom
  2. Exercise
  3. Your Stories
  4. Total Mobility Cards
  5. World MS Day

1. Connecting with Zoom
We now have a number of Support Groups and meetups happening through Zoom. If you haven’t participated and would like to learn more please contact either Luminita at luminita@msakl.org.nz or Lucy at lucy@msakl.org.nz. Or, if you are in the Rodney area, contact Catherine at catherine@msakl.org.nz. They can either connect you to an existing group or work with you to form a new group.

Here is the link to sign up to zoom -https://zoom.us/signup. If you have any questions or would like to talk to someone about how it all works just send us an e-mail with your contact details toinfo@msakl.org.nz. We will be happy to talk you through it.

2. Exercise options
We provided a number of free exercise options for people to try out in our April e-newsletter. These proved to be quite popular with people. Remember keeping as active as you can is essential for your health and well-being. A few other sites to add to last months list are:

Yoga with Adrienne - https://www.youtube.com/user/yogawithadriene – Adrienne has numerous yoga and meditation practices on her free youtube channel that you can do. They are for all levels of fitness and practice. I have been doing her Home 30 day yoga journey and am now on day 23. I’m proud to say I haven’t missed a day of yoga and look forward to her lovely classes each day.

Les Mills had free workouts on TVNZ. These are no longer available, however you can still look at a free 7 day home trial on their website - https://www.lesmills.com/ondemand/

Chair fit with Lucy was another website we have been told about, although we haven’t had any reviews on this yet. They are designed for people with MS and are all done in a chair. If you try any of her exercises please be sure to drop me a line and let me know how it went:https://www.youtube.com/channel/UCCAFFLNiOjqR5FXtuH8ySxA.

3. Your StoriesHave you got a story you might like to share? I’m looking at some personal experiences that may be of interest to our readers that we can put in our next magazine or on our new website (currently in development). The stories need to be fairly short (no more than 600 words). We also like it if you can include a photo or two with your story.

What kind of stories are we looking for? Anything from lockdown stories, family stories, travel stories, personal project stories, or just day to day living with MS stories. Please send your stories with the subject header ‘My Story’ to me at ingrid@msakl.org.nz.

Every story sent will be acknowledged and much appreciated!

4. Total Mobility CardsFrom Tuesday 14 April 2020 Total Mobility had reduced fares for eligible users requiring essential travel. In most cases this meant the trip was free. The change will be in place until 30 June 2020, but maybe reviewed if the alert level is reduced to level 2 or 1. You will still need to swipe your TM card at the start and finish of your trip, with the difference being that you will not be asked to pay your part of the fare for most trips. If you’re asked to pay for the fare, please ask for a receipt and let Auckland Transport know (Call Centre 09-366 6400)

Remember, if you’re unwell, don’t travel. If you need to travel, ring Healthline first (0800 358 5453).

For more information on Total Mobility cards please contact your Community Advisor or e-mail us at info@msakl.org.nz.

5. World MS DayWorld MS Day is the MS movement’s annual campaign to raise awareness of the condition and to support and connect the 2.3 million people living with MS worldwide. It is a day to celebrate global solidarity and hope for the future.

Saturday the 30th of May is World MS Day and the theme for 2020-2022 is connections with the campaign called MS Connections and the hashtag #MSConnections. The campaign will be about building community connection, self-connection and connections to quality care.

In the past we have had some support groups and individuals recognise World MS Day with special activities. This year we are looking for ideas of things that we can do together to acknowledge this important day and the vital theme of Connection. Please send your ideas to me at ingrid@msakl.org.nz.

Stay tuned for more information coming your way soon on World MS Day 2020.

Thank you, lovely people, for being part of our community. Please remember that we are here for you, so please keep giving us your feedback. Let us know what we are doing well and what we can be doing better to enable us to continue to provide a valued service for all.

With love, light and blessings

Ingrid Minett
General Manager